for a cause of serious concern, Rs 18 crore was raised in
Kerala through crowdfunding in seven days for an 18-month-old
child suffering from a rare genetic disorder called spinal
Mohammed, son of P K Rafeeq and Mariyumma, requires a
dose of Zolgensma, which is considered as one of the most
expensive drug in the world.
The treatment committee on Monday informed the public
that over Rs 18 crore reached the bank accounts opened for
the donations and asked the people not to deposit any more.
"We have received more than Rs 18 crore in the bank
account. The people came together and raised this amount for
our little boy," Mattul panchayat president Farisha told
The treatment committee, headed by MLA M Vijin, had a
week ago appealed to the public to crowdfund for the
treatment of Mohammed.
The campaign was taken over by social media resulting in
raising the amount within seven days from across the world.
Incidentally, 15-year-old Afra, the elder sister of
Mohammed, was also affected with the same disease and is
The medicine will have to be procured from abroad
and the treatment committee has petitioned the state
government to initiate the process for procurement.
Medical experts suggest that the child will have
to be administered the dose of the medicine before he reaches
the age of two.