Outlook This Week: Geneocide

In India, 70 million are likely to be suffering from rare genetic disorders. Usually, the road to diagnosis is long and brooding. In many cases, it may take up to a couple of decades for a correct diagnosis. Alok Bhattacharya, a biomedical scientist, talks about rare genetic diseases, the stigma attached around them and why there is a need to raise awareness. Bhattacharya, whose daughter is suffering from GNE myopathy, has set up a NGO called World Without GNE Myopathy (WWGM) which works to raise awareness about rare genetic disorders.
14 June 2019